By Katherine McLaughlin, MEd | September 4, 2018
Founder and Director of Training, Elevatus Training
I remember the day Karen Topper asked me the question. “Can we create a sexuality education curriculum where people with developmental disabilities are the teachers? Can we have them be actively involved in creating this curriculum?”
Karen is Executive Director of Green Mountain Self Advocates (GMSA) in Vermont. GMSA supports people with developmental disabilities to act as advocates for themselves, take control of their own lives, and educate their peers. Her question startled me and pushed my thinking. My original ideas were that I, along with other professionals, would create a curriculum. We would be the teachers, and people with disabilities would be the students.
And then, I started to imagine. And now, I ask you to imagine…
ETR is excited to be offering Katherine McLaughlin’s curriculum Sexuality Education for People with Developmental Disabilities (revised 2018 edition). This powerful resource is appropriate for high school students and adults. It provides 22 engaging lessons with handouts and teaching tools. It is designed for either co-teaching teams (a self-advocate with developmental disabilities paired with a staff educator,) or sexuality and health educators who teach without the team approach. It is a useful supplement for existing curricula and can also be used as a stand-alone resource for classes focused exclusively on groups of students with developmental disabilities.
Can you imagine a sexuality education class for people with developmental disabilities where the teachers are people with disabilities?
Can you imagine if we had people with disabilities actively involved in creating materials and classes? If we truly encompassed the idea, “Nothing about us without us”?
Can you imagine people with developmental disabilities seeing themselves as part of the solution and valued for their contributions?
If this were our approach, what kind of impact would that have on the sexual health of people with developmental disabilities?
As a sexuality educator and trainer, I have had the pleasure of partnering with Green Mountain Self Advocates. We created a sexuality education curriculum that is designed to be team taught by people with developmental disabilities and professionals. That was when I learned two important lessons.
One was that people with disabilities could actually be part of the solution, not just the receivers of sexuality education.
The second lesson was that we really could apply the principle, “Nothing about us without us.” We used this framework in creating the curriculum. People with disabilities reviewed the materials, offered feedback, and then helped us field test, working in teaching teams where they were paired with a professional.
I also learned more about self-advocacy and sexual self-advocacy. Here are GMSA’s definitions:
Many people with disabilities have told me that it is easier to be a self-advocate than a sexual self-advocate. When they ask about getting a job or living on their own, everyone works hard to help them achieve their goals. When they talk about wanting a relationship or starting to date, there is silence. They can feel the discomfort. This silence and discomfort come from beliefs that many people have about people with developmental disabilities and their sexuality.
Self-advocates—people with developmental disabilities who are taking control of their own lives—say they get the same negative messages about sexuality that everyone in our culture gets. But then they get even more. The messages they get come from many sources.
One self-advocate spoke about being in a mainstream health class in high school, studying nutrition and exercise and safety with everyone else—and then being removed from the class during the sexuality unit. This was five years ago, not the 1940s! The message people with disabilities hear loud and clear is, “You are not sexual.”
Paradoxically, another message they receive is, “You are oversexed.” There’s more to this message. “You can’t handle this subject. It will give you ideas. You won’t be able to control yourself.”
Many parents and professionals believe that people with disabilities will always be children. I’ve often heard someone say, “Yes, they may be 18, but they have a cognitive age of 5.”
All of these messages lead to one immensely damaging and incorrect belief: “You don’t need this information.” This leaves people with developmental disabilities at risk for all kinds of negative consequences, including sexual abuse and loneliness.
How do we change this scenario? How do we see people with disabilities as sexual beings who deserve and want sexuality education? And how do we help others—colleagues, teachers, non-disabled peers, community-based professionals—change their understanding as well?
Here are some steps that have been useful for me and those I have trained.
Sexual self-advocacy is a powerful concept for all students. Let’s make sure we include all students when we teach these principles.
Afterwards, a staff person approached me. She said, “When I sat down to listen to the voices of people with developmental disabilities, I found myself doing what I do when I go to a foreign country. I think, ‘These people are going to be so different from me. I have to prepare myself for that.’ Then, once I am in the foreign country, I realize, ‘These people are just like me.’ That is what happened today. I started out thinking people with developmental disabilities are very different from me, but once I started to listen, I realized, they are just like me.”
What do you want out of your own life and relationships? People with developmental disabilities share many of these same wishes and goals.
What if we were all able to do these things—engage with people with developmental disabilities, enlist them in sexuality education efforts, and support them in becoming sexual self-advocates? What kind of impact would this have on their sexual health?
Here’s what I can imagine. We would see people with developmental disabilities:
Can you imagine?
Katherine McLaughlin, MEd, is a certified sexuality educator and the founder of Elevatus Training, LLC. She is also the author of Sexuality Education for People with Developmental Disabilities, now available through ETR’s catalog. She can be reached at firstname.lastname@example.org.